Divergence in Menopause Symptom Narratives Between Online and Clinical Settings

JAMA Network Open

Tanya Mehta, BS; Monica Agrawal, PhD; Irene Y. Chen, PhD, Yulin Hswen, ScD, MPH

Table. Topic Distribution in Online Forum Posts vs Electronic Health Record Clinical Notes About Menopause

Summary

The transition to menopause presents with a series of symptoms that affect women’s physical, cognitive, and emotional well-being.1 Although clinical data has documented menopausal symptoms,2 research suggests these data sources may inadequately capture the full scope of patient-reported experiences. Social listening from online forums can provide authentic narratives of health experiences, especially for women,3 often shared in unaltered and lived contexts4 and can play a role in identifying silent needs, underreported concerns, and unnoticed symptoms,5 particularly in stigmatized or poorly understood conditions.6 With this in mind, this cross-sectional study asked how do menopause related symptoms discussed in user-generated online posts compare with symptoms documented in electronic health record (EHR) clinical notes?

Citation

Mehta, Tanya, et al. “Divergence in Menopause Symptom Narratives Between Online and Clinical Settings.” JAMA Network Open 9.7 (2026): e2623217.

BibTex

@article{mehta2026divergence, title={Divergence in Menopause Symptom Narratives Between Online and Clinical Settings}, author={Mehta, Tanya and Agrawal, Monica and Chen, Irene Y and Hswen, Yulin}, journal={JAMA Network Open}, volume={9}, number={7}, pages={e2623217}, year={2026}, publisher={American Medical Association} }

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